PARTICIPANTS: All the family/caregivers of patients with Dravet Syndrome
ACTIVITY: Discover the impact of Dravet Syndrome on the family through a survey with the help of a campaign on social media.
COLLABORATION: DSEF and all the associations related, Zogenix and Wickenstones.
GOAL: To generate a novel evidence base that enhances the understanding of Dravet Syndrome. This evidence base to help improve understanding of the course of Dravet Syndrome and its human and economic consequences as experienced by patients and their caregivers. The overall objective is to see this evidence published in a peer reviewed academic journal.