11 May SUDEP Awareness Day
Have You Heard About Sudep?
Sudden Unexpected Death in Epilepsy – SUDEP – is a rare event and refers to a death in a person with epilepsy in which there is no other clear cause of death (such as cancer, stroke, heart disease or an accident). In cases of SUDEP, there is often evidence of an associated seizure.
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At the moment, physiological mechanisms that lead to SUDEP are unknown and there are no proven ways to prevent it. International group of collaborating researchers are currently dedicated to uncovering the risk factors, causes, and mechanism of SUDEP to improve future epilepsy treatment and SUDEP prevention. Patients communities can help research through sharing data and materials.