EPAG – EPICARE Network

EPAG – EPICARE Network

The EpiCARE network would develop and deliver highly-specialized diagnostics and care to improve interventions and outcome in individuals with rare and complex epilepsies. The EpiCARE group, coordinated by Prof. Helen Cross from Great Ormond Street Hospital for Children (GOSH), has been recognised as Read more

Horizons For Dravet Syndrome

Horizons For Dravet Syndrome

This yearly round table is organized by Dravet Italia Onlus on behalf of the Dravet Syndrome European Federation, reuniting doctors, researchers and patient organizations. #3 edition took place in September 2016 in Prague, Czech Republic. The participants list and topics discussed are available Read more

Eurordis Patient Organisation 2017

Eurordis Patient Organisation 2017

For all its projects, Dravet Syndrome European Foundation was awarded by Eurordis the title "Patient Organisation 2017". DSEF became member of Eurordis in 2015. With more than 730 rare disease patient organisations in 65 countries covering over 4,000 diseases, Eurordis is recognised and listened Read more

Message from Dr. Charlotte Dravet

Message from Dr. Charlotte Dravet

The second edition of the International Dravet Syndrome Awareness Day (June 23, 2015) was marked by members of Dravet Syndrome European Federation at the conference “The Future of Refractory Epilepsy Syndromes”. A video message from Dr. Charlotte Dravet was presented Read more

SUDEP Awareness Day

SUDEP Awareness Day

HAVE YOU HEARD ABOUT SUDEP? Sudden Unexpected Death in Epilepsy – SUDEP – is a rare event and refers to a death in a person with epilepsy in which there is no other clear cause of death (such a cancer, stroke, Read more