Awareness and fundraising

4th edition of Horizons for Dravet Syndrome

The International Symposium on the theme "Dravet Syndrome and Other Sodium Channel Related Encephalopathies" will be held in Verona, at the Palazzo dell Gran Guardia, on March 15-16, 2018, with two days dedicated to scientific research on genes SCN1A, SCN2A and SCN8A. The Read more

EPAG – EPICARE Network

The EpiCARE network would develop and deliver highly-specialized diagnostics and care to improve interventions and outcome in individuals with rare and complex epilepsies. The EpiCARE group, coordinated by Prof. Helen Cross from Great Ormond Street Hospital for Children (GOSH), has been recognised as Read more

Horizons For Dravet Syndrome

This yearly round table is organized by Dravet Italia Onlus on behalf of the Dravet Syndrome European Federation, reuniting doctors, researchers and patient organizations. #4 edition is scheduled for March 15-16, 2018, to be held in Verona, Italy, with the theme: "Dravet Syndrome Read more

Eurordis Patient Organisation 2017

For all its projects, Dravet Syndrome European Foundation was awarded by Eurordis the title "Patient Organisation 2017". DSEF became member of Eurordis in 2015. With more than 730 rare disease patient organisations in 65 countries covering over 4,000 diseases, Eurordis is recognised Read more

Message from Dr. Charlotte Dravet

The second edition of the International Dravet Syndrome Awareness Day (June 23, 2015) was marked by members of Dravet Syndrome European Federation at the conference “The Future of Refractory Epilepsy Syndromes”. A video message from Dr. Charlotte Dravet was presented Read more

SUDEP Awareness Day

HAVE YOU HEARD ABOUT SUDEP? Sudden Unexpected Death in Epilepsy – SUDEP – is a rare event and refers to a death in a person with epilepsy in which there is no other clear cause of death (such as cancer, stroke, Read more