New funding for Dravet syndrome

New funding for Dravet syndrome

We are very happy to announce that the Deutsche Forschungsgemeinschaft (DFG - German Research Foundation), a German research funding organization financed by the German states and the federal government, has granted several millions of Euros to a large research project Read more


European patient registry

European patient registry

DSEF finds it very important to collect data in a proper, easy and ethical way, so that scientists and other stakeholders can learn from it, work on better understanding and better treatments. Currently, we are focusing on two instruments in particular: RESIDRAS, Read more

Biobanks map

Biobanks map

The terms biobank or biorepository  refer to a structured collection of biological samples stored for the purposes of  present and future researches. The biobank operates according to ethical, legal and quality standards with the aim to collect, process, store and Read more