What is
Dravet Syndrome

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy.

Specialist Area

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Our Mission

The Dravet Syndrome European Federation (DSEF) is dedicated to improving the lives of affected people through collaboration, education, awareness and facilitating research.

Specialist Area

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International
Register

International Register of Dravet Syndrome and other syndromes correlated with genes on SCN1A and PCDH19

Specialist Area

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DSEF
Members

Registry Platform – Residras

Research Projects

Events

Message from dr. Charlotte Dravet

The patient organizations are very important for support and information, but also to establish fair relations with the physicians.

Improving the lives of people living with Dravet Syndrome

For all its projects, DSEF was awarded by Eurordis the title “Patient Organisation 2017”.

DRAVET SYNDROME IN NUMBERS:

1:22,000

Incidence of Dravet Syndrome in Europe

72%

Patients have motor impairment

17

DSEF members

1,500

Patients represented

News

SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
DSEF
25 September, 2024
SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
DSEF
24 September, 2024
The European Epilepsy Congress Rome 2024
The European Epilepsy Congress has shown significant growth in recent...
DSEF
23 September, 2024
Research: Project SCN1A-UP! Therapeutic strategies for Dravet syndrome
The project SCN1A-UP!, coordinated by Dr Massimo Mantegazza and funded...
DSEF
30 July, 2024