What is
Dravet Syndrome Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Specialist Area Learn more Our Mission The Dravet Syndrome European Federation (DSEF) is dedicated to improving the lives of affected people through collaboration, education, awareness and facilitating research. Specialist Area Learn more International
Register International Register of Dravet Syndrome and other syndromes correlated with genes on SCN1A and PCDH19 Specialist Area Learn more
DSEF
Members
Platform Residras

Registry  Platform – Residras

Research Projects Dravet Europe

Research Projects

Events Dravet Europe

Events

Message from dr. Charlotte Dravet

The patient organizations are very important for support and information, but also to establish fair relations with the physicians.

Improving the lives of people living with Dravet Syndrome

For all its projects, DSEF was awarded by Eurordis the title “Patient Organisation 2017”.

DRAVET SYNDROME IN NUMBERS:

1:22,000

Incidence of Dravet Syndrome in Europe

72%

Patients have motor impairment

17

DSEF members

1,500

Patients represented

News

All News

Collaborations