Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dravet Syndrome and driven by patients and patients’ caregivers. Together we have built a strong European community of people living with Dravet Syndrome. We are this community’s voice and, directly or indirectly, we fight against the impact of Dravet Syndrome.
DSEF was founded in 2014 by eight organisations, aiming to jointly fight for a cure for this terrible disease. Since then, it has continued to support the birth of new local organisations and thus has gained new members.
Madrid 2014
Madrid 2015
Prague 2016
Barcelona 2017
Vienna 2018
What are our aims?
- To improve the quality of life of patients and their family caregivers by promoting and developing medical/social initiatives.
- To stimulate research and development into treatments by specialist physicians and researchers.
- To raise funds for medical and social research.
- To raise awareness of Dravet Syndrome among the public and the medical/social community.
- To help countries without a local Dravet Syndrome association to form their own association.