DISCUSS Survey – results


The DISCUSS survey results are officially published in the journal Developmental Medicine and Child Neurology as of January 2018 (with an early access to the online version: Quality of life and comorbidities associated with Dravet Syndrome severity: a multinational cohort survey).


Moreover, the article was selected as January’s “Editor’s Choice” and on the occasion prof. Lieven Lagae, University Hospitals Leuven, Belgium, prepared a great summary of the results of the survey.


You can watch his video below:

Also, a useful presentation is included in this poster, presented at the European Paediatric Neurology Society’s annual congress in Lyon, 2017.

Many thanks to all the participants for taking the time to fill in the survey and all DSEF associated groups for their help with recruiting participants and piloting, proofing and translating the survey.