Message from dr. Charlotte Dravet

The patient organizations are very important for support and information, but also to establish fair relations with the physicians.

Improving the lives of people living with Dravet Syndrome

For all its projects, DSEF was awarded by Eurordis the title “Patient Organisation 2017”.

DRAVET SYNDROME IN NUMBERS:

1:22,000

Incidence of Dravet Syndrome in Europe

72%

Patients have motor impairment

17

DSEF members

1,500

Patients represented

News

  • We are smiling, we are kind, we are fearless, we...

  • Almost all discussions around Dravet Syndrome are uncomfortable but necessary....

  • The Dravet Syndrome European Federation is happy to announce the appointment of Luis Miguel Aras as the new Chief Scientific Officer.

  • SCN1A-UP! has been selected among the projects to be funded by the European Joint Programme on Rare Diseases

Collaborations