A new publication on the efficacy of Fenfluramine was issued recently in Epilepsia, acknowledging how the registry RESIDRAS can serve as a useful tool
We would like to present to you our new Board of Directors and the new Executive Committee, following elections held at the beginning of May 2020.
23 June 2020 will be the sixth Dravet Awareness Day. On this occasion, patient organisations from around the world will take different actions to rais
The long awaited results of “Vaccination in Dravet Syndrome – a European survey” are finally out! Most probably, the fact that only 55% of the patient