Dravet Syndrome
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Message from dr. Charlotte Dravet
The patient organizations are very important for support and information, but also to establish fair relations with the physicians.
Improving the lives of people living with Dravet Syndrome
For all its projects, DSEF was awarded by Eurordis the title “Patient Organisation 2017”.
DRAVET SYNDROME IN NUMBERS:
1:22,000
Incidence of Dravet Syndrome in Europe
72%
Patients have motor impairment
17
DSEF members
1,500
Patients represented
News
European caregivers face decades-long emotional and social burden in Dravet Syndrome
Caring for a person with Dravet Syndrome places a long-term,...
06 July, 2026
Study: People with epilepsy have many unmet psychosocial and everyday needs
Many people living with epilepsy around the world struggle with...
09 June, 2026
Publication of data showing Zorevunersen effects on Dravet Syndrome patients
Stoke Therapeutics, a biotechnology company that works on a proposed...
05 March, 2026
Dravet Syndrome Means more than Seizures, New Research Warns
Dravet Syndrome, a rare epilepsy disorder, hides deeper challenges, and...
29 November, 2025
Collaborations
