The Dravet Syndrome European Federation is happy to announce the appointment of Luis Miguel Aras as the new Chief Scientific Officer.
SCN1A-UP! has been selected among the projects to be funded by the European Joint Programme on Rare Diseases
This year’s Dravet Awareness banner has a record number of patient organizations and is more international than ever: 28 patient organizations from ar
The Committee for Orphan Medicinal Products (COMP) within the European Medicines Agency (EMA) has recently reviewed positively the application for orp