Our Surveys

These projects target to improve the quality of life of patients and their family caregivers by promoting and developing medical/social initiatives.
Dravet Discuss survey results

The DISCUSS survey results are officially published in the journal Developmental Medicine and Child Neurology as of January 2018 (with an early access to the online version…

Survey on falls in epilepsy

The data aims to encourage study on the new systems of protection. If you have not yet completed the survey we would like to invite you to now do so in order to aid our data analysis…

Vaccination in Dravet Syndrome

As a result of a joint effort of more than 15 national patient organizations, “Vaccination in Dravet Syndrome – a European survey” collected data from 319 caregivers…