Our Surveys

These projects target to improve the quality of life of patients and their family caregivers by promoting and developing medical/social initiatives.
Dravet Discuss survey results

The DISCUSS survey results are officially published in the journal Developmental Medicine and Child Neurology as of January 2018 (with an early access to the online version…

Survey on falls in epilepsy

The data aims to encourage study on the new systems of protection. If you have not yet completed the survey we would like to invite you to now do so in order to aid our data analysis…

Gait impairment

One of the characteristics of Dravet Syndrome is the progressive impairment of gait and consequently reduced functional mobility of patients. On the long term…

SUDEP Dravet Syndrome Epilepsy

Dravet Syndrome is characterised by high epilepsy-related premature mortality and a marked young age at death. Sudden Unexpected Death in Epilepsy (SUDEP)…