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Dravet Syndrome
What Is Dravet Syndrome
Educational materials for caregivers and professionals
International Patient Organizations
Dravet Awareness Day
About us
Members Map
History
Board of Directors
Scientific Advisory Board
Become a Member
Events
Projects
Registry
European patient registry
Our Surveys
Discuss
Falls
Vaccination in Dravet Syndrome
Fintepla – The Patients’ Perspective
A single continent, major differences in treatment options
Research
RNA therapy
Gait
SUDEP
Mouse Model
Novel open-access mouse model of Dravet Syndrome
News
Contact
Dravet Syndrome
What Is Dravet Syndrome
Educational materials for caregivers and professionals
International Patient Organizations
Dravet Awareness Day
About us
Members Map
History
Board of Directors
Scientific Advisory Board
Become a Member
Events
Projects
Registry
European patient registry
Our Surveys
Discuss
Falls
Vaccination in Dravet Syndrome
Fintepla – The Patients’ Perspective
A single continent, major differences in treatment options
Research
RNA therapy
Gait
SUDEP
Mouse Model
Novel open-access mouse model of Dravet Syndrome
News
Contact
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Dravet Awareness Day
Each year, on June 23
rd
, Dravet patient organizations from all around the world stand together, united in their mission of raising awareness for Dravet Syndrome and funding research that will impact the lives of those affected by this disease.
Check out this year events on the dedicated Facebook page
Dravet Awareness Day