These projects target to improve the quality of life of patients and their family caregivers by promoting and developing medical/social initiatives.
The DISCUSS survey results are officially published in the journal Developmental Medicine and Child Neurology as of January 2018 (with an early access to the online version…
The data aims to encourage study on the new systems of protection. If you have not yet completed the survey we would like to invite you to now do so in order to aid our data analysis…
As a result of a joint effort of more than 15 national patient organizations, “Vaccination in Dravet Syndrome – a European survey” collected data from 319 caregivers…
The news regarding a new drug indicated to treat Dravet Syndrome having received a positive opinion from the European Medicine Agency was largely applauded in our community…