These projects target to improve the quality of life of patients and their family caregivers by promoting and developing medical/social initiatives.
A new research which has just been funded by the Italian charity Gruppo Famiglie Dravet Onlus, supported by five other European associations dedicated to Dravet Syndrome…
One of the characteristics of Dravet Syndrome is the progressive impairment of gait and consequently reduced functional mobility of patients. On the long term…
Dravet Syndrome is characterised by high epilepsy-related premature mortality and a marked young age at death. Sudden Unexpected Death in Epilepsy (SUDEP)…