16 Giu DSUK Conference 2019
Bookings are now open for the upcoming DSUK conference in...
Activity
04 Giu Platform Residras closer to its goal of 1,000 Dravet patients
We are happy to announce that Dravet Romania is the...
24 Apr New research project jointly supported by 6 European associations
A new research which has just been funded by the...
26 Lug Drug development for Dravet Syndrome
Did you know there are 14 developing therapies to treat...
26 Giu Election of Julian Isla as member of the European Orphan Drug Committee
On 18th June the European Commission appointed members representing patients’...
20 Giu New funding for Dravet Syndrome
We are very happy to announce that the Deutsche Forschungsgemeinschaft...
11 Mag SUDEP Awareness Day
Sudden Unexpected Death in Epilepsy – SUDEP – is a...
13 Gen Eurordis Patient Organisation 2017
For all its projects, Dravet Syndrome European Foundation was awarded...
11 Gen EPAG – EPICARE Network
The EpiCARE network would develop and deliver highly-specialized diagnostics and...