19 Oct SUDEP – An uncomfortable but necessary discussion
SUDEP is that kind of word you don't want to...
Activity
16 Jun DSUK Conference 2019
Bookings are now open for the upcoming DSUK conference in...
04 Jun Platform Residras closer to its goal of 1,000 Dravet patients
We are happy to announce that Dravet Romania is the...
24 Apr New research project jointly supported by 6 European associations
A new research which has just been funded by the...
26 Jul Drug development for Dravet Syndrome
Did you know there are 14 developing therapies to treat...
26 Jun Election of Julian Isla as member of the European Orphan Drug Committee
On 18th June the European Commission appointed members representing patients’...
20 Jun New funding for Dravet Syndrome
We are very happy to announce that the Deutsche Forschungsgemeinschaft...
11 May SUDEP Awareness Day
Sudden Unexpected Death in Epilepsy – SUDEP – is a...
13 Jan Eurordis Patient Organisation 2017
For all its projects, Dravet Syndrome European Foundation was awarded...
11 Jan EPAG – EPICARE Network
The EpiCARE network would develop and deliver highly-specialized diagnostics and...