30 Jul Research: Project SCN1A-UP! Therapeutic strategies for Dravet syndrome
The project SCN1A-UP!, coordinated by Dr Massimo Mantegazza and funded...
Specialist Area
18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
29 Dec New Chief Scientific Officer for DSEF
The Dravet Syndrome European Federation is happy to announce the...
03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...
03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...
20 Mar Information on COVID-19 vaccination
The Scientific Advisory Board of DSEF has formulated their latest...
09 Oct New study on Fenfluramine using Residras registry
A new publication on the efficacy of Fenfluramine was issued...
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