09 Nov Dravet Preclinical Research Meeting – 19 November 2025
We are excited to announce the upcoming Dravet Preclinical Research...
Specialist Area
01 Jul A Snapshot of Life with Dravet Syndrome
Before the Dravet Syndrome Awareness month, the Dravet Syndrome European...
24 Mar 2025 is a great year for Dravet drug research. Learn what’s ahead!
We live in a very interesting period for Dravet Syndrome,...
25 Sep SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
24 Sep SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
30 Jul Research: Project SCN1A-UP! Therapeutic strategies for Dravet syndrome
The project SCN1A-UP!, coordinated by Dr Massimo Mantegazza and funded...
18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
29 Dec New Chief Scientific Officer for DSEF
The Dravet Syndrome European Federation is happy to announce the...
03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...