24 Mar 2025 is a great year for Dravet drug research. Learn what’s ahead!
We live in a very interesting period for Dravet Syndrome,...
Specialist Area
25 Sep SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
24 Sep SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
30 Jul Research: Project SCN1A-UP! Therapeutic strategies for Dravet syndrome
The project SCN1A-UP!, coordinated by Dr Massimo Mantegazza and funded...
18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
29 Dec New Chief Scientific Officer for DSEF
The Dravet Syndrome European Federation is happy to announce the...
03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...