25 Sep SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
Dravet Syndrome Tag
24 Sep SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
23 Sep The European Epilepsy Congress Rome 2024
The European Epilepsy Congress has shown significant growth in recent...
18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...
03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...
20 Mar Information on COVID-19 vaccination
The Scientific Advisory Board of DSEF has formulated their latest...