18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
The development of more effective support systems and an enhanced...
We are smiling, we are kind, we are fearless, we...
Almost all discussions around Dravet Syndrome are uncomfortable but necessary....
The Dravet Syndrome European Federation is happy to announce the...
SCN1A-UP! has been selected among the projects to be funded...
This year’s Dravet Awareness banner has a record number of...
The Committee for Orphan Medicinal Products (COMP) within the European...
A new publication coming from Poland offers detailed information about...
Proud to receive new members - and hopefully also some...