22 Jun Dravet Syndrome Awareness Day
This year’s Dravet Awareness banner has a record number of...
Author: DSEF
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...
03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...
20 Mar Information on COVID-19 vaccination
The Scientific Advisory Board of DSEF has formulated their latest...
09 Oct New study on Fenfluramine using Residras registry
A new publication on the efficacy of Fenfluramine was issued...
29 Jun New Board of Directors
We would like to present to you our new Board...
17 Jun Dravet Awareness Day 2020
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" z_index=""][vc_column][vc_column_text]The sixth Dravet Awareness Day is getting really close!
[/vc_column_text][/vc_column][/vc_row][vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css=".vc_custom_1586596855407{padding-top: 30px !important;}" z_index=""][vc_column][vc_column_text]23 June 2020 will be the sixth Dravet Awareness Day. On this occasion, patient organisations from around the world will take different actions to raise awareness for this rare disease.
09 Jun Vaccination – a European Survey
The long awaited results of “Vaccination in Dravet Syndrome –...