19 Oct SUDEP – An uncomfortable but necessary discussion
SUDEP is that kind of word you don't want to...
Author: DSEF
23 Jun Dravet Awareness Day 2022
We are smiling, we are kind, we are fearless, we...
22 Jun SUDEP forum at EEC2022 Geneva
Almost all discussions around Dravet Syndrome are uncomfortable but necessary....
29 Dec New Chief Scientific Officer for DSEF
The Dravet Syndrome European Federation is happy to announce the...
03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
22 Jun Dravet Syndrome Awareness Day
This year’s Dravet Awareness banner has a record number of...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...
03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...