Platform Residras Dravet

Platform Residras closer to its goal of 1,000 Dravet patients

We are happy to announce that Dravet Romania is the latest European association to agree to join Platform Residras.


Dravet Syndrome European Federation, Strichting Dravetsyndroom Nederland/Vlaanderen, Dravet Syndrome UK, Alliance Syndrome de Dravet (France), have also previously decided to share the project and to collaborate in their dissemination to reach the goal of 1,000 Dravet patients and at least 2,000 in general including also the Scn1a Mutation and PCDH19. Other centers and associations (Croatia, Portugal, Germany, Switzerland) are working to share the project.