06 Jul European caregivers face decades-long emotional and social burden in Dravet Syndrome
Caring for a person with Dravet Syndrome places a long-term,...
Dravet Syndrome European Federation Tag
29 Nov Dravet Syndrome Means more than Seizures, New Research Warns
Dravet Syndrome, a rare epilepsy disorder, hides deeper challenges, and...
21 Nov The Dravet Preclinical Research Meeting, a step forward for future therapeutic approaches
The first pan-European meeting on Preclinical Research in Dravet Syndrome,...
09 Nov Dravet Preclinical Research Meeting – 19 November 2025
We are excited to announce the upcoming Dravet Preclinical Research...
01 Jul A Snapshot of Life with Dravet Syndrome
Before the Dravet Syndrome Awareness month, the Dravet Syndrome European...
23 Jun Bloom Forward
On the occasion of Dravet Awareness Day, which we celebrate...
25 Sep SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
24 Sep SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
23 Sep The European Epilepsy Congress Rome 2024
The European Epilepsy Congress has shown significant growth in recent...
18 Jul New tool to improve quality of life of Dravet patients and their families
The development of more effective support systems and an enhanced...
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