23 Jun Bloom Forward

On the occasion of Dravet Awareness Day, which we celebrate every year on June 23, we are raising hope.

This stunning visual, created by Gruppo Famiglie Dravet (Italy) in collaboration with art director Diana Albo, speaks about where we have all been – the complexity, the struggle, the heartbreak. But more importantly, it points to where we are going: a future in which the intertwined roots of our shared journey finally begin to bloom into something new, radiant, and promising. The visual for the 2025 International Dravet Syndrome Day invites us to Bloom Forward.

We dare to hope for better treatments for Dravet Syndrom and to envision a world where the course of this devastating condition might truly shift.

This year, we are celebrating not just a day, but a broadening horizon, a new direction, and the image aims to convey all of this: the complexity of the disease, yes, but also the power of transformation. An intertwining of roots, thoughts, fragments… that finally come together. Flowers and butterflies soaring upwards, carrying with them hope, possibility and the future.

This is the fifth edition of a unified global visual for the Dravet Syndrome Awareness Day, grouping not only DSEF’s member organisations from Europe, but also the Dravet Syndrome Foundation from the US, Dravet Canada, Dravet Japan, Dravet Taiwan, a group of Dravet patients from China, as well as organisations and patients’ representatives from South America – Argentina, Bolivia, Brazil, Chile, Colombia, Uruguay.

Dravet Syndrome is a catastrophic epileptic and developmental encephalopathy. Usually appearing in infancy, it is characterized by frequent different seizure types. Due to frequent status epilepticus, hospitalizations are often required. Dravet Syndrome has a high SUDEP rate. But epilepsy is not the only issue in Dravet Syndrome. Patients often develop: motor and speech impairment, behavioral disorders, cognitive impairment, gait disorders, food disorders, sleep disorders, autism. Dravet Syndrome with its comorbidities severely affects the quality of life of patients and their families.

Despite all these, we are much more than a diagnosis. And we plan to bloom forward!