25 Sep SCN1A-UP! at the end – Gene therapy approaches
In this video, Dr Gaia Colasante summarizes the strategies and...
Events
24 Sep SCN1A-UP! at the end – project outcomes
In the video above, Dr Massimo Mantegazza, the coordinator of...
23 Sep The European Epilepsy Congress Rome 2024
The European Epilepsy Congress has shown significant growth in recent...
30 Jul Research: Project SCN1A-UP! Therapeutic strategies for Dravet syndrome
The project SCN1A-UP!, coordinated by Dr Massimo Mantegazza and funded...
19 Oct SUDEP – An uncomfortable but necessary discussion
SUDEP is that kind of word you don't want to...
22 Jun SUDEP forum at EEC2022 Geneva
Almost all discussions around Dravet Syndrome are uncomfortable but necessary....
22 Jun Dravet Syndrome Awareness Day
This year’s Dravet Awareness banner has a record number of...
29 Jun New Board of Directors
We would like to present to you our new Board...
17 Jun Dravet Awareness Day 2020
[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" z_index=""][vc_column][vc_column_text]The sixth Dravet Awareness Day is getting really close!
[/vc_column_text][/vc_column][/vc_row][vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern" css=".vc_custom_1586596855407{padding-top: 30px !important;}" z_index=""][vc_column][vc_column_text]23 June 2020 will be the sixth Dravet Awareness Day. On this occasion, patient organisations from around the world will take different actions to raise awareness for this rare disease.
09 Jun Vaccination – a European Survey
The long awaited results of “Vaccination in Dravet Syndrome –...