03 May Dravet Syndrome Ireland joins DSEF
Posted at 20:29h in News, Specialist Area
Dravet Syndrome Ireland joins DSEF
Proud to receive new members – and hopefully also some unicorn power! Dravet Syndrome Ireland, founded only in 2020, has very recently joined Dravet Syndrome European Federation.
“Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other severe genetic early infantile epilepsies in Ireland.”, according to the founding members.
You can check some of their families’ stories at https://www.dravetsyndromeireland.org/blog-2.