13 Jan Eurordis Patient Organisation 2017
For all its projects, Dravet Syndrome European Federation was awarded by Eurordis the title “Patient Organisation 2017”.
DSEF became member of Eurordis in 2015. With more than 730 rare disease patient organisations in 65 countries covering over 4,000 diseases, Eurordis is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases. Eurordis works to build a strong pan-European community of patient organisations and people living with rare diseases.