03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
development of new treatment for rare diseases Tag
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
26 Jun Election of Julian Isla as member of the European Orphan Drug Committee
On 18th June the European Commission appointed members representing patients’...