22 Jun SUDEP forum at EEC2022 Geneva
Almost all discussions around Dravet Syndrome are uncomfortable but necessary....
Author: DSEF
29 Dec New Chief Scientific Officer for DSEF
The Dravet Syndrome European Federation is happy to announce the...
03 Dec Research up for SCN1A
SCN1A-UP! has been selected among the projects to be funded...
22 Jun Dravet Syndrome Awareness Day
This year’s Dravet Awareness banner has a record number of...
04 May Orphan designation for Lorcaserin in Europe
The Committee for Orphan Medicinal Products (COMP) within the European...
03 May Dravet Syndrome – The Polish Family’s Perspective Study
A new publication coming from Poland offers detailed information about...
03 May Dravet Syndrome Ireland joins DSEF
Proud to receive new members - and hopefully also some...
03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...
20 Mar Information on COVID-19 vaccination
The Scientific Advisory Board of DSEF has formulated their latest...
09 Oct New study on Fenfluramine using Residras registry
A new publication on the efficacy of Fenfluramine was issued...