03 May Extended access to Fintepla
DSEF representatives and Zogenix team have met recently and discussed...
Specialist Area
20 Mar Information on COVID-19 vaccination
The Scientific Advisory Board of DSEF has formulated their latest...
09 Oct New study on Fenfluramine using Residras registry
A new publication on the efficacy of Fenfluramine was issued...
09 Jun Vaccination – a European Survey
The long awaited results of “Vaccination in Dravet Syndrome –...
08 Jan Epilepsia Journal
Happy to start 2020 with a supplement of Epilepsia dedicated...
24 Apr New research project jointly supported by 6 European associations
A new research which has just been funded by the...
26 Jul Drug development for Dravet Syndrome
Did you know there are 14 developing therapies to treat...
26 Jun Election of Julian Isla as member of the European Orphan Drug Committee
On 18th June the European Commission appointed members representing patients’...
20 Jun New funding for Dravet Syndrome
We are very happy to announce that the Deutsche Forschungsgemeinschaft...
13 Jan Eurordis Patient Organisation 2017
For all its projects, Dravet Syndrome European Foundation was awarded...